Saturday, November 21, 2009

The Dreaded “R” Word

Hmmmmm…  I have never posted about the word “retarded” and what it means or represents to me.  So I figured it is about time that I give my opinion on the subject.

About 5 years ago, I attended a meeting of our local ARC.  As I walked into the room, it was filled with older people and I felt a bit out of place.  I was welcomed with open arms and before the meeting I chatted with the only couple in the room that I knew.  The president called the meeting to order and we sat down and began.  I, and another gal from our support group, were guests so that was the first order of business.  We both introduced ourselves and talked briefly about our families and what had brought us there.  They each went around the room and told their stories as well.  Most of the families had children who were no longer children, but adults with disabilities.  Some lived at home, some lived at group homes, but most of their children were older than me. 

We got to one lady in particular….quite possibly the oldest woman in the room ( I was guessing around 70 or 75).  She started off my saying “Hi my name is M and I have a retarded daughter…..”  I was not sure what the rest of her story consisted of because just like you, my jaw dropped and I couldn’t believe what I had just heard.  I couldn’t believe that this woman would refer to her beautiful adult daughter this way.  There was a big part of me that wanted to get up from my chair and leave..never to return.  But I bit my tongue and decided she was the most ignorant person that I had ever met!  I mean seriously, who refers to their child like that…. certainly I never would!  There was another part of me that wanted to cry!  I felt like …what was she doing here if she thought of her daughter that way???

Fast forward to a few months later and we were planning our first Buddy Walk with The ARC.  It was myself and three other women from the ARC working on something or another.  M was not there and the rest of us got to talking and someone else referred to the “r” word and this time I couldn’t hold my tongue.  I asked WHY in the world would you refer to your child or another human being as being “retarded”  I just didn’t get it.  People had worked and fought for so long for people with different abilities to be included in society and the very people who were advocating for these changes and wanted them were doing such a disservice to the same group of people.

It was then that one of the women spoke up.  Remember all these women were definitely over 50 and mostly over the age of 60 or 65!  She told me that when they had their children 30 and 40 years ago, their children were referred to as “mongoloid” and they were told to give them up and never look back.  Some did…they didn’t!  It was those people who started the movement to include their children in society and wouldn’t “hide” them away in their homes or in institutions.  When the new PC term “retarded” was given to their kids, they felt like it was a victory over the word “mongoloid”.   They felt like times were getting better and this was a step in the right direction. 

I guess what I am trying to say is that there are people that now don’t like the word special needs or disability, and at some point in the future, these words might be degrading to our kids just as the word retarded is now.  I definitely DO NOT condone the use of the word, but it was nice to get a perspective of a mother who fought tooth and nail for her child to be a productive member of society and what we think of now as a derogatory word as a “triumph” for them!

Saturday, November 14, 2009

Blog Award


Rachel over at adventuresinthephilippines.blogspot.com gave me this blog award!!  THANK YOU RACHEL!!

There are two rules to accepting the award:
1) Accept the award, post it on your blog together with the name of the person who has granted the award and his or her blog link.
2) Pass the award to 10 other blogs.Remember to contact the bloggers to let them know they have been chosen for this award.
Rachel picked some awesome bloggers, so I am going to pick 10 that she did not choose. If any of you would prefer not to have your blog linked, just leave me a nice comment saying so, and I will be happy to remove the link...and you still get to keep the award and pass it on if you would like :)

 

My friend Gillian over at Pocket Lint 

My friend Amy over The Flege Farm

My friend Amy over at Larkins Place

My friend Amy over at Many Sides of Amy

(I know, I have A LOT of friends named Amy!!! LOL)

My friend Jen over at Rejenerations

My friend Julie over at Cap'n Jacks Adventures

My friend Renee over at My Special K's

My friend Melissa over at Journey to a Promise

My friend RK over at Just RK

My friend Kristin over at The Faulkner Family

Wednesday, November 11, 2009

Reece’s Rainbow Angel Tree Project

This year, I signed up to be a Christmas Prayer Warrior for sweet little Shawna!  So when you see this on the side of my blog, you will know what it’s for.  I will be doing a fundraiser for her adoption fund starting next week!  This is where I ask for your help!  I would like to do a silent auction on my blog for her!  If anyone out there makes anything cool or has something to donate towards the Silent Auctions, please let me know ASAP!!!!

Now on to what the Angel Tree Project is…………………….

Reece’s Rainbow is the organization where we found our daughter to be and I can’t say enough good things about this group.  They are advocating for orphans with Down syndrome as well as children with other special needs.  Their biggest fundraiser is the Angel Tree project which helps to raise funds for each waiting child with Down syndrome.  If you donate at least $35 dollars, you will receive a beautiful porcelain photo ornament to hang on your tree, like the one pictured above.   I am specifically advocating for a little boy, Marshall who is such a cutie and currently has no funds in his grant adoption fund.  If you would like to donate for him, click on the button below and to the right.  Below is the letter which explains exactly how the fundraiser works.

Announcing our 4th Annual

CHRISTMAS ANGEL TREE

The Reece’s Rainbow Down Syndrome Adoption Ministry is a 501c3 charity which promotes and facilitates the international adoption of children with Down syndrome.

In only 3 years, more than 225 children with Down syndrome and other special needs have found their “forever families” at the end of Reece’s Rainbow!

Your gifts have made that possible!

The Angel Tree is our most important fundraiser each year, and this year we have(166) orphans with Down syndrome around the world who are in need of grant donations (and adoption!)

From November 1-December 31, 2009, each of our orphaned children is praying that YOU will be their “Christmas Warrior”.   Please help them raise money in their adoption grant fund so a *forever family* can  afford to rescue them from life in a mental institution.

There are families lined up and waiting to save these children,but they need financial help to do it! With an average cost of $25,000 to adopt internationally, every penny helps.  Even the smallest donations really add up, and can truly change the course of a child’s life!

*** With your donation of $35 (or more), you will receive a beautiful, porcelain Christmas ornament with your sponsored child’s photo on the back. ***

This is a special way to share Christmas with an orphaned child, and to make it possible for them to  spend NEXT Christmas at home with their new family!

Regardless of your faith, ethnic background, or nationality, your gift is life-saving in nature.  Our goal is to raise $1000 or more for each of our waiting children.  You can help by donating and sharing this Angel Tree with others! This is a very meaningful and personal gift idea for the holidays too!

Your additional gifts to our Voice of Hope fund help keep our ministry operational.

Give the gift of a family this Christmas!

 

International sponsors welcome!

*** Be SURE to watch and share our new video (click link to the right)….powerful, moving, compelling, and definitely worth watching!  It really captures the essence and urgency of our work! ***

We also ask you to please just hit *forward* to everyone in your address book, and share this official Angel Tree announcement with everyone you know!

Visit our home page at www.reecesrainbow.org throughout the year for more ways to bring our children into loving families. All donations are tax deductible.

Sunday, November 8, 2009

Orphan Sunday

 

 

LERA
Girl, Born August 7, 2005


If Lera doesn't have a family committed to her adoption within the next few days, she will be sent to a mental institution where she will then be unadoptable and 'sentenced' to a crib for the rest of her life.
Here's a little about her: Lera is a gorgeous little girl with blonde hair and blue eyes. She is 4 years old. She is quite high functioning, and doing very well. She has flat feet and a systolic heart murmur, but no major heart conditions. She is able to walk and climb, she eats by herself, dances, and understands and follows directions. She has also been transferred to the regular class, so she living and learning with her typical peers.
There's a grant of $1,000 available to the family that adopts her. It's so sad that she's run out of time. She is in RUSSIA and those are closed institutions. Here's the info about adopting from her region of Russia:

  • 2 trips
  • Both parents for first trip, about one week
  • Both parents travel for 2nd trip, approximately 14 days (One parent may leave after the court proceedings are finalized, after about 5 days.)
  • Total program and travel fees under $25k
  • Fee includes a $1000 orphanage donation
  • Only one child can be adopted at a time
  • Married couples and single mothers may apply

Please pray for a family for Lera to come to her rescue quickly!! Are you that family?

Thursday, November 5, 2009

Why God Made Moms!!

Actual answers given by 2nd grade school children to the following questions:


Why did God make mothers?
1. She's the only one who knows where the scotch tape is.
2. Mostly to clean the house.
3. To help us out of there when we were getting born.


How did God make mothers?
1. He used dirt, just like for the rest of us.
2. Magic plus super powers and a lot of stirring.
3. God made my Mom just the same like he made me. He just used bigger parts.


What ingredients are mothers made of ?
1. God makes mothers out of clouds and angel hair and everything nice in the world and one dab of mean.
2. They had to get their start from men's bones. Then they mostly use string, I think.


Why did God give you your mother and not some other mom?
1. We're related.
2. God knew she likes me a lot more than other people's moms like me.


What kind of little girl was your mom?
1. My Mom has always been my mom and none of that other stuff.
2. I don't know because I wasn't there, but my guess would be pretty bossy.


3. They say she used to be nice.
What did mom need to know about dad before she married him?
1. His last name.
2. She had to know his background. Like is he a crook? Does he get drunk on beer?
3. Does he make at least $800 a year? Did he say NO to drugs and YES to chores?

 
Why did your mom marry your dad?
1. My dad makes the best spaghetti in the world. And my Mom eats a lot.
2. She got too old to do anything else with him.
3. My grandma says that Mom didn't have her thinking cap on.


Who's the boss at your house?
1. Mom doesn't want to be boss, but she has to because dad's such a goof ball.
2. Mom.. You can tell by room inspection. She sees the stuff under the bed.
3. I guess Mom is, but only because she has a lot more to do than dad.


What's the difference between moms & dads?
1. Moms work at work and work at home and dads just go to work at work.
2. Moms know how to talk to teachers without scaring them.
3. Dads are taller & stronger, but moms have all the real power 'cause that's who you got to ask if you want to sleep over at your friend's.
4. Mom's have magic, they make you feel better without medicine.


What does your mom do in her spare time?
1. Mothers don't do spare time.
2. To hear her tell it, she pays bills all day long.


What would it take to make your mom perfect?
1. On the inside she's already perfect. Outside, I think some kind of plastic surgery.
2. Diet. You know, her hair. I'd diet, maybe blue.


If you could change one thing about your mom, what would it be?
1. She has this weird thing about me keeping my room clean. I'd get rid of that.
2. I'd make my mom smarter. Then she would know it was my sister who did it and not me.
3. I would like for her to get rid of those invisible eyes on the back of her head.

WHEN YOU STOP LAUGHING --
SEND IT ON TO OTHER MOTHERS, GRANDMOTHERS, AUNTS
and anyone else who has anything to do with kids or just needs a good laugh!!!

Wednesday, November 4, 2009

My Firsts

So I hijacked this from my friend Renee !!  Hope you don’t mind – I thought it was interesting – Blast from the Past!!

1. Who was your FIRST prom date?
Lyle Staudt – I am pretty sure that I roped him into going with me because I was only a freshman and couldn’t go myself!  LOL  Sorry Lyle!!!

2. Do you still talk to your FIRST love?
As a matter of fact, I am friends with him AND his wife on FB

3. What was your FIRST alcoholic drink?
Some stupid concoction that we took to the movies.  Myself and Monica.  WOW – It was so bad, but we didn’t want each other to think we were wimps so we drank it.  Got sick and called my mom to come get us early!   Told her we had the flu!!

4. What was your FIRST job?
Teaching swimming lessons at the YMCA!!

5. What was your FIRST car?
A Gremlin – Yes I know – it was Periwinkle color and was the greatest car ever.  We had so much fun cruising in that car. 

6. Who was the FIRST person to text you today?
No one yet today, but it is still early!!

7. Who is the FIRST person you thought of this morning?  Joe because I wished he was here to help me take the kids to the dr!

8. Who was your FIRST grade teacher?  Sister Mary Magdeline – yes she was a strict as she sounds

9. Where was your FIRST ride on an airplane to?  It was to France when I was 5.  We flew to Iceland first, so that was pretty cool!

10. Who was your FIRST best friend & do you still talk?  ummm.. that would be Kim and we are still BEST FRIENDS!! 

11. Where was your FIRST sleep over?  The one I remember first was at Monica’s house for a birthday party.

12. Who was the FIRST person you talked to today?  That would be Katie telling her to go back to bed at 4:30 am!

13. Whose wedding were you in the FIRST time?  My Sister’s when I was 13,  It was the day after the first 7th grade dance in Junior High!  Left her rehearsal dinner early to go to the dance!

14. What was the FIRST thing you did this morning?  Changed diapers and got my coffee!

15. What was the FIRST concert you ever went to?  The Statler Brothers back when I was in grade school!  Went with my parents!  LOL

16. FIRST tattoo?  A cross on my chest the week after I turned 18

17. FIRST piercing?  Ears and that is ALL I will ever pierce.  I was 3 for the first two holes and in college when I got an extra hole in one ear!

18. FIRST foreign country you've gone to?  Iceland then to Luxembourg and France on the same trip!

19. FIRST movie you remember seeing?  Jaws at the theater… I was scared!!!!

20. When was your FIRST detention?  I don’t even remember.. probably in high school.. I was a good child!!!

22. Who was your FIRST roommate?  That would be Missy in College!  We lived together for 6 years ..  2 years after college!

23. What was the FIRST sport you were involved in? Swimming… I was on the swim team, taught swimming lessons and was a lifeguard

24. What were the FIRST lessons you ever took? Swimming lessons when I was 4 or 5 I think.

25. What is the FIRST thing you do when you get home? Hug the kids – OR should I say… they bombard me!

26. What was you FIRST cuss word or words?  Hmmm.. I don’t remember, but probably shit…  who knows.. I am sure it was something horrid that I said at a totally inappropriate time and my parents were horribly embarrassed.

27. FIRST time you went wrapping houses or egging? I never did that!  Sorry!

28. FIRST person to break your heart?  That would probably be my first love, mentioned above.  He broke up with me and at that time, it was the most devastating thing in the world!

29. FIRST CD you've ever bought?  I think it was Randy Travis..  when I was in college….. Remember how old I am and I got my first CD player when I was in college!!!

30. Where did you go/do for your FIRST date?  I am sure it would be my first prom.  Not too bad for a first date huh??

If you post this on your blog, please leave me a message so I can check out your blog and read all about your firsts!!!!!

Sunday, November 1, 2009

Yesterday….

Ok, so I said I was going to take a break today, but I had to comment on this.  LOL

Last night we were Trick-or-Treating in our neighborhood.  We went up to a house and a little girl said “Hi Katie” and they ran up to each other and started talking.  Turns out this is L from her preschool.  We hear A LOT about L  and from what I gather they are best of friends.  So, we met L’s parents and apparently L talks about Katie A LOT at home as well and asks all the time if Katie can come over and play!  So L’s mom said that they would have to have Katie over to play sometime very soon and we would be in touch! 

Ok, first, let me stay that this makes me so excited and sad at the same time.  Happy that my daughter is making friends and it is neat to see who she will be growing up with!  Very sad because it means that she is growing up and starting to make friends that I don’t know!  Just seems weird to me!  BUT we will see how the play date goes as it will be the first time that Katie is away from me, besides at school, and without her brothers and sister around to play with.  We’ll see how she behaves herself in the presence of someone else’s mommy!!! 

I promise.. tomorrow… Halloween Pictures!!!

Saturday, October 31, 2009

The End …. Day 31

Well I did it!  (As Josie would say)  I blogged every day for the month of October and for Down Syndrome Awareness Month!  I can’t believe I actually did it, but it was fun!  I think I covered a lot of area.  Our own personal experiences mixed in with some facts and some fun things that people with Down syndrome are doing! 

I guess it all boils down to the fact that I wouldn’t change my journey with Josie and Jacob for anything.  I am who I am today because of them and the things they each brought to my life.  My relationship with Joe is stronger, I think, than it would be if we hadn’t have went through the things we have went through having two special needs children.   I believe it is a life changing situation that either breaks up a family or  brings it much closer together and for us it has been the latter. 

I pray that Josie and Jake’s future is bright and that people are as accepting of them as they get older as they are now!  If I can change one person’s mind about how they look at individuals with Down syndrome, then I will be happy!  I wish I could change the world, but it can only start with one person.  Maybe, just maybe with a domino effect, we, as parents, can change the world…one mind at a time!!

Thank you for reading this month and I will  to continue to blog on a very,very regular basis!  HOWEVER, I am taking tomorrow off from blogging!  You will get to see Halloween pictures on Monday!!  HAPPY HALLOWEEN EVERYONE!!!

Friday, October 30, 2009

Orphanages in Ukraine --- Day 30

While this wasn’t the orphanage that Jacob was in, this is the general condition of most orphanages in Ukraine! If you are interested in adopting a little one with Down syndrome or other special need, please visit www.reecesrainbow.org OR consider sponsoring a child during the Angel Tree Project -- It will begin on November 1st and continue to December 31st. For a $35.00 you donate to a child’s sponsorship account, you will receive a beautiful Christmas Ornament with the child’s picture on it! Please consider giving the gift of LIFE for Christmas!!!


Thursday, October 29, 2009

Video Again --- Day 29

 

Ok, I will admit, I am kinda running out of blogging ideas.  I see that there was some issues with the video yesterday, so I changed a little bit and am reposting it!

Wednesday, October 28, 2009

Many faces of Down Syndrome ---- Day 28

These are some of the most beautiful faces in the world!!!

 

Tuesday, October 27, 2009

The very BEST day of Down Syndrome Awareness Month ----- Day 27

5 years ago today --- was one of the most amazing days of my life. (Tied evenly with 4 other special days! LOL). Early in the morning I got up for work. My due date wasn't for another two weeks, but I was feeling a bit strange, but never thought the day would go the way it did.

I was at work for about an hour and called my OB's office. The baby hadn't been moving a lot, so I was a bit nervous. I was a first time mom so that probably contributed to the paranoia! She told me to go ahead and come in. Left my work all on my desk and grabbed my purse and off I went. "I am sure I will be back" I mentioned to my friends before I left.

A non-stress test and an ultrasound later, I was sure that everything was ok and was thinking I was going back to work. My dr came in and said, they were a little concerned so it was better to just go ahead and get the process started if that was ok with me. Um....YEAH!!!

They wisked me off to Labor & Delivery. This was probably about 11:00 am. After some difficult hours....some just uncomfortable and one that was just downright scary, at 6:42 pm, Josette Elaine was born. She weighed 6lbs 14oz and 19 inches long. She was perfect. I got to give her a quick kiss and she and Joe were off to the NICU because her O2 levels were on the low side!

 

It wasn’t until very late that evening, that I would get a chance to hold her.  They brought her to my room to try to get her to nurse and she really didn’t want any part of it.  During the night her O2 levels dropped again and that was the last time they brought her to me.  For the next 10 days, I would have to go visit my little girl in the NICU.   We left the hospital on oxygen, but only for 7 days and then we were tube free! 

 

Josie_2

I can’t believe how quickly 5 years have passed!  It seems like just yesterday that Josie was our only child and my sweet sleeping baby!  Today she is in preschool, talks, walks, signs, tells jokes, makes us laugh, fights with her siblings, adores her siblings, loves macaroni and cheese with hotdogs, loves princess movies, gives hugs when someone is crying, loves her teachers, and is so grown-up and independent for only being 5.  My life has changed in a million ways because of her and every single one of them is for the better!!  Happy 5th Birthday my sweet girlie!!  Mommy loves you with all her heart!  Today and EVERYDAY!!!

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Monday, October 26, 2009

Update on Jacob!! ----- Day 26

Well, we have been home for just over 4 months now!  Can you believe it?  Just about a year ago, is when we made the decision to adopt him and we have already been home for 4 months!  AMAZING!!!

I was trying to figure out how I wanted to give his update and I’ll do it a little differently!

 

What he WASN’T doing at the orphanage

-- He was just 12 lbs when we took him from the orphanage

-- sitting up

-- making eye contact with anyone

-- rolling over

-- barely holding his head up

-- drinking much at all if anything

-- he had zero muscle tone and could barely lift his legs up in the air when he was on his back

-- smiling

-- bear weight on his legs

-- didn’t have a single bit of interest in ANY toys of any kind!!

 

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What he IS doing NOW (after 4 short months)

-- Smiling ALL the time and his giggles are just the best sound in the world.. I wonder if he ever giggled in the orphanage..although he probably didn’t have much to giggle about!

-- He CAN sit up by himself, but he still doesn’t trust himself very well so I have to sit behind him for “moral” support!  LOL

-- makes eye contact whenever ANYONE walks in to the room.  Knows who mommy and daddy are and will sometimes look when asked “Where’s mommy/daddy?”

-- Rolls to get everywhere—then will pivot on his back or belly to change his rolling path if what he wants is not where he is headed!

-- Drinks from a bottle and loves his milk and juice

-- Has so much more truck and leg strength that now not only can he sit up, but he is starting to at least bear weight on his legs!

-- LOVES Toys and will do whatever he can to get whatever he can.  He, Owen and Daddy play cars ALOT and Jake gets right into it with the rest of them.

-- Now weighs just about 19 lbs (which is still small for a 2 year old, but we’re making progress)

-- LOVES his siblings…. especially loves to watch them jump around while he laughs and giggles!

 

So I guess, all in all, he is doing exceptional since he has been home.  Can you believe that he will start preschool next fall already??  Seems too fast, but he will be ready when it’s time!!

It is amazing what a little love and physical therapy will do for an orphan!  We LOVE YOU JAKE!!!!

 

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Sunday, October 25, 2009

Eastern European Mental Institutions ---- Day 25

While this may make you sick to your stomach (It did me), it is the harsh reality of what people with disabilities face if they are transferred to a mental institution. Most children are transferred sometime between the age of 4 and 6 to places just like this! While this was in Serbia, it might as well say Eastern Europe as they are almost the same! This is what Jacob’s fate would have been if he had not been adopted by the time he was 4 years old – Less than two years from now! Praise God for the ones that have been saved….Pray to God for the ones left behind!!!


Saturday, October 24, 2009

Prayers for Polly ---- Day 24

As you can see from my new button on the right of the blog, we are praying for Polly.  Our dear friends, Gillian and Sergei have four wonderful little girls.  Elaina, Zoya, Polly and Evangeline.  The first three are biological and the newest member, Evie, is a blessing by adoption from Ukraine.  Polly and Evie both have been also blessed with that extra chromosome that we love so much!!  Their family has had a difficult week.  Polly (3 1/2) was diagnosed with Moyamoya Syndrome.  Please pray for their family!!

I want to give you a little background on my relationship with Gillian.  Just about 3 1/2 years ago, I was reading posts on a Down syndrome forum that I am a member of.  I was captured by a particular post about a woman who was living in Ukraine and had just given birth to a little girl with Down syndrome.  She was originally from Michigan and her husband was Ukrainian.  They were missionaries in Ukraine with their two daughters when little Polina was born.  Well, we know what typically happens to children with special needs in Ukraine.  I was captured by Gillian and her family.  I ready every post and kept up on their journey.  Just 6 weeks after Polly was born, they returned to the US in order to make sure she had everything she needed as far as medical care and Early Intervention!  I was in awe of her.

Time went on and I continued to follow her journey.  I was in-love with Polly and the pictures I saw of her stole my heart!  Then in September of 2008, I traveled several hours to Peoria, Illinois for a meet-up weekend.  Gillian, Sergei and the girls were there.  I felt an instant connection to Gillian and her sweet Polly.  Though they were only there for one night, we did have a couple of nice talks.  Once we were home, I felt compelled to email her.  We exchanged emails and soon after that, I emailed her that we were thinking about adopting!  It was with much surprise that I received an email back that they too were thinking about adopting a little girl from Ukraine.  Our friendship grew from there and we traveled the adoption path together.  Gillian and I were able to meet up a couple times in Ukraine at the end of my trip and the beginning of hers. 

I know now why God pulled at my heart strings that weekend in Peoria.  We were traveling a similar path and she has become a wonderful and dear friend to me!  Please Pray for Polly and her family!!!